Webinar Series: Metastatic Breast Cancer Engagement
One key principle to meaningful patient-centered research is the inclusion of stakeholder perspectives, especially the patient perspective, for identifying the most important questions that need to be answered in addition to the most important patient-desired outcomes.
Webinars 1-3 from October to December of 2017 will prepare clinicians, patients, and researchers involved in metastatic breast cancer research and treatment to engage more effectively with each other and will begin to highlight potential top research priories from each stakeholder's perspective. These priorities will be discussed further at the Metastatic Breast Cancer Engagement Conference in June of 2018.
· Metastatic breast cancer patients, caregivers and family members
· Clinicians, clinician scientists, and translational researchers who focus on studying and/or treating metastatic breast cancer
Webinar Descriptions and Registration
Each webinar will be an hour long with time for questions following. Webinars will occur using the Zoom webinar platform. Those who register for a webinar will be given log in instructions. Each webinar can hold up to 500 live participants. Registration is on a first-come-first-served basis, but all webinars will be recorded and shared publicly here.
Want to share your own thoughts on what top translational and clinical metastatic breast cancer research priorities are? Click here to fill out our anonyous 5-question survey. Your input will help shape discussions at our June 22-23 engagement conference.
Webinar 1: Panel Discussion From the Stage IV Metastatic Cancer Patient Perspective
October 18, 2017 at 1 PM ET
Several stage IV metastatic breast cancer patients will discuss 1) what it is like to be diagnosed with and live with stage IV metastatic cancer, 2) how the metastatic cancer community currently interacts with researchers and clinicians to promote the incorporation of patient-desired outcomes into research studies/trials, 3) current barriers inhibiting patient-centered metastasis research, and 4) what they each feel are important translational research and comparative effectiveness research priority topics for metastatic breast cancer research.
Patient Speakers: Kelly Shanahan, MD (METAvivor and METUP.org), Leslie Falduto (METAvivor), Marina Park (METAvivor), and Patricia Wu, PhD (METAvivor)
Registration for webinar 1 has closed. Link to webinar recording: https://youtu.be/3UkDUITVKZ8
Webinar 2: Panel Discussion From the Perspective of the Translational Metastatic Breast Cancer Researcher
November 13th at 4:30 PM ET
A panel of translational metastatic breast cancer researchers will discuss: 1) Their perspective - the nitty gritty of what it is like to be a metastatic breast cancer researcher right now, 2) How they as researchers currently interact with patients and clinicians to incorporate patient-desired outcomes into research studies/trials, 3) Current barriers for engaging with patients and clinicians in metastatic breast cancer research, and 4) Translational research topics that are a priority for metastatic breast cancer from their perspective.
Registration for webinar 1 has closed. Link to webinar recording: https://youtu.be/dHJ8baIVTcs
Webinar 3: Panel Discussion From the Perspective of Oncologists That Treat Stage IV Metastatic Breast Cancer Patients
December 13 at 7:30PM ET
(CER = clinical comparative effectiveness research - research that compares the benefits and harms of existing treatment options)
Oncologists who treat stage IV metastatic breast cancer patients discuss 1) their roles in the diagnosis and treatment of stage IV metastatic disease, 2) how they currently interact with patients and translational researchers, 3) their biggest challenges or barriers to including patient-desired outcomes in clinical trial design and treatment plans (focus on the clinician/patient interaction), and 4) what they each feel are the most important clinical comparative effectiveness research (CER) priorities for the stage IV metastatic breast cancer.
Speakers: Dr. Anita Aggarwal (Medical oncologist that treats male and female MBC patients, Washington DC, VA Medical Center), Dr. Amber Orman (Radiation Oncologist, Moffitt Cancer Center, Florida), Dr. J. Thaddeus Beck (Medical Oncologist, Highlands Oncology Group, Arkansas), and Dr. John Shook (surgical oncologist, St. Luke's, Kansas City, MO).
Registration for this webinar has closed. Link to webinar recording: https://youtu.be/kF38NycG_JY
Are webinars free?
All webinars and webinar recordings are free! However, projects such as this are only made possible through the support of Metastasis Research Society memberships. Please consider joining the Metastasis Research Society today and continuing to facilitate progressive, patient-centered metastasis research worldwide. In return, you will receive exclusive benefits. We are open to membership from researchers/clinicians ($105-$165 options) and supporting membership from metastatic patients, caregivers, family members, and friends ($30-$55 options). Thank you!
This webinar series was organized by members of the Metastasis Research Society and collaborating partners, METAvivor Research and Support Inc. (project subcontractor), and the Sentinel Node Oncology Foundation (SNOF, project partner - Cancer Metastasis logo).
This webinar series was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (6102-MRS).
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